Its been a yucky day. I haven't been feeling well and debated even getting out of bed to come up here today. I'm glad I did. Brody's kidneys are really struggling. The PICU doctors have been giving him about the highest pediatric dose of Lasix (a water pill to help him pee) that they dare give--along with a couple other similar water pills. He still hasn't been urinating much at all. He is super puffy. His eyes look like little water balloons. I'm not sure he can even open them. The PICU doctors have been trying to "straight cath" him. This is when they use a catheter to force his bladder to empty and then immediately remove the cath. This has never been very effective for him and I warned them of that yesterday. The new team of residents disregarded my concerns. Today, they took my advice and placed a more long-term catheter. We'll likely leave that in for a few days. Also, Brody is quite anemic and could probably benefit from another a blood transfusion in the next couple days. However, they will not consider that if he is not urinating because getting a blood transfusion puts a lot of extra fluid in the body which can be really harmful if he can not flush it off. In an attempt to decrease his fluid intake, the doctors have switched his formula to Suplena. He has had trouble with this in the past. He throws it up. With a trach, you run a higher risk of aspiration which could potentially be fatal. However, this different formula will cut his fluid intake in half. Its a risk we're going to have to take. Also, with that dang arm of his, they still just want to "wait and see what happens". Hello?! Its completely immobilized! I wish they'd look into it a little better. Granted, its not life threatening, but its hardly fair to make him lay around day after day with a potentially broken or clotted arm....
I just want to go home and take a big old pill and slip into bed until I feel better, but I don't dare leave his side for more than a few minutes because there are times when I seriously doubt the intentions of the staff, namely the doctors. So I'll stay here and fight for his rights and ensure he is taken care of properly.
2 years ago
2 comments:
Get feeling better! (I am sure the stress and frustration doesn't help much with that though.)
Brody is sure lucky to have you as a mother. As easy as it would be to give up you continue to hang in there and keep fighting for him. That's great,,, for him... but who keeps fighting for you? Just remember, we are all praying for you too. Amie, you are in our prayers every day. Keep up the good work and keep up the fight for your family. Good for you.
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