2 years ago
Thursday, May 1, 2008
As I previously mentioned, Brody can hardly bend his left elbow. They did an ultrasound to look for blood clots associated with the PICC line he had last week. No clots. So now they wonder if its not the bone. They will likely xray it tomorrow. As for his VEPTR, they were able to squeeze him onto Monday's schedule. It should only take an hour and is a relatively minor procedure in comparison to when he had the VEPTR hardware placed last fall. Throughout the day, Brody has just been sleeping a lot. He's a little over medicated. We're working to find a good balance so that we can manage the Storms without knocking him clear out. Oddly enough, I'm starting to think Brody has been Storming all along, just on a much milder scale. Ever since he was born. We always likened them to "autistic tendencies" but I am now beginning to think they were Storms. Sudden and unexplainable spells of agitation. I don't know. Maybe I'm just overthinking it.
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Brody
The storms of life seem to visit us all,
and it don't really matter who we are.
Some storms are light, and just flurry on by,
and some shake us clear to the core.
Some storms come in so hard and fast,
we don’t know it until they’ve gone by.
And some come in kind of slow, then they stay,
and all we can do is ask why.
And why do some folks have more storms than others?
It aint right and just don’t seem fair.
Cause Brody, who’s my Schubby buddy,
has certainly had more than his share.
Now I know God’s a watchin’, lookin’ over us all,
but sometimes it just don’t seem right.
A little boy like Brody, barely four years old,
just the thought of it makes my jaw tight.
Well I guess Brody must be special in God’s eyes,
cause the storms of life are meant to make us tough.
And the storms that he and his family have seen,
Well they’re almost more than enough, yet…
With each new storm that seems to enter his life,
Brody just keeps beating the odds.
I guess he hasn’t fulfilled his full purpose in life,
he’s not ready to return to the Gods.
So we’ll hold our angel just as long as we can,
and we’ll love him every single day.
And we’ll fight the storms right there beside him,
just as long as he’s willing to stay.
Greg Harwood
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