After my last post, I returned to Brody's side to find him awake and quite alert. He looked up at me with those big blue eyes and gave me a very faint grin. My heart melted. The happiness was short-lived and the Thalamic Storms soon returned. But in that moment, I felt so much peace.
Today, I met with the orthopedic surgeon about whether or not we would proceed with the rib expansion procedure next week. They said that as long as he is stable and the PICU doctors think he is up for it, they see no reason no to go forward. In fact, rather than doing the VEPTR surgery Thursday, they are going to TRY to move it up to Monday just so we don't have to go home just to turn around and come back. Also, upon further exams by Rehab and Physical Therapy, they have noticed Brody's left arm will not bend well. It doesn't appear to be anything related to the bone but rather a possible side effect to the PICC line (a type of IV that is placed in the arm and is threaded up the vein to the heart) They may do an ultrasound today to see what problems, if any, there may be. As always, I will update the blog with any updates.
2 years ago
5 comments:
It still amazes me how a child's smile can make you melt. I wish I had inspiring words or a wonder medication to make all the pain go away, but I don't so for now I will just keep praying for you guys!
A smile is a wonderful thing, no matter how faint. Love you ole schubby buddy, see you on Saturday. And by the way, keep smiling at your mom.
What a great thing a child can do! I am so happy to hear the good news!! Keep up the faith and can't wait to read the next update!!
Keep hanging in there guys. There's a lot of people that love you very much and are waiting for you both to return home soon.
Hope to see you this weekend.
Aunt Skylar
Hang in there Amie! I plan to see you Monday for his surgery. I am getting ready to go work in your house for a while. Mom
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