3 years ago
Friday, May 9, 2008
Care Conference
Brody's night went pretty well. He looks slightly less puffy today, but his kidneys still aren't working like they should. They are trying to arrange a care conference for today. I will have most of Brody's regular doctors, in all specialties, in a room together to discuss our long-term goals. I mainly just have questions for Renal, but the other specialists may have some good thoughts to add. Until then, our plan for today is start an additional medication to help jump-start those kidneys. It has to be given IV through a dedicated line so he's been poked quite a bit this morning. As for his arm, it looks terrible. Worse everyday. The doctors are baffled. Possibly Lymphoma or maybe some strange side effect to numerous blood transfusions? On a happy note, his cultures from his Titanium Ribs came back negative. No more staph infection! So we were able to discontinue that antibiotic today. On an even happier note, we have lots of family coming today. I've been looking forward to this day all week and I'm sure Brody will really enjoy having the extra company. He always does better when surrounded by loved ones. :)
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5 comments:
Hi there. My name is Pam, I have been following your blog for a while. I actually was looking for my blog so I didn't have to re-type the address while we were up at PCMC 2 weeks ago. I accidently clicked on your page and have been hooked.
Brody is such an amazing boy!! I keep him in my prayers every night.
I have a little boy who is medically fragile, he has Down Syndrome and various other condtions.
I have to agree with you on the care that is sometimes given at PCMC. It can be frustrating.
When we were up there in Jan of 07 my son was given 10X more pain medication than he should have gotten and he coded. He was very sick afterwards with an aspiration pnemounia.
We have been in and out of the hospital the past few weeks, and I hate it when we get the arrogant residents. I really do.
When you are a mom of a child with special needs, YOU know your child better than anyone else, and they need to realize that. Heck, I should have a nursing degree by now. I'm sure you should too.
Anyways, I just wanted to stop by and say hi, and let you know that we are thinking about you.
If you are ever bored, you can check out our little guy.
http://rhettsjourney.blogspot.com/
I am glad to hear a little good news from you but I really wanted to tell you Happy Mother's Day. You are a wonderful mother and person. Brody and Kaybri are so lucky to have you! Okay well we are thinking of you and enjoy all that family.
Every little bit of good news is better than any regressing or staying the same. Brody's got a fighting spirit that refuses to let us down.
I'm glad to hear you guys are getting more company again today, and I hope things go well for you in the care conference.
Oh the good news just sends goosebumps down my spine!! Good luck and I am glad to hear of the family coming to see you!! Happy Mothers day and I don't need to tell you that you are the best mom I know!!!
Thinking of you guys. Hope you have a good weekend. Looking forward to seeing you Monday.
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