Tuesday, April 29, 2008

Thalamic Storms

Brody's agitation has been increasing throughout the day. The assumption was that his belly was hurting due to gas or stool. We've been actively treating for that, but his agitation level has not come down. Then, as Brody was having one of his spells, the Resident Doctor stood and watched. He seemed to be in deep thought and quickly left to go find the PICU Attending Physician. A few of them rallied around for a few minutes and concluded that Brody's agitation has nothing to do with his belly. But rather his brain. They call it Thalamic Storms. I don't know much about it. It was described to me as sudden and often severe spells of high blood pressure, increased heart rate, hypothermia or fever, and general signs of pain. Basically, the brain tricks the nervous system into responding as if there is severe pain or trauma. However, the body doesn't actually feel pain at all. Strange, I know. And this condition is likely permanent...but manageable. Typically, you respond to these "storms" with sedatives to get the brain to ease up on the nervous system. The Attending said that they absolutely will not release us until we get to the bottom of this and find someway to manage these "storms". I will try to find more info on Thalamic Storms and update the blog as soon as I do.

3 comments:

Anonymous said...

Well I'm glad you finally found someone who can help you, or at least sees something else happening. It sounds like the other place was just out of ideas and wanted someone else to deal with him. I so fee for you and your family. You continue to be in my prayers.

Karie

tanya.... said...

I once read something at someone's house that is a dear friend and the strongest girl I know, If he brings you to it, he will bring you through it. Please just remember this and remember we are constantly thinking of you and praying for you!! LOL :)

Brody's grandma and grandpa said...

Nothing like another rare disorder is there? As if Brody isn't already one of a kind now there is something else for us to learn about. Oh well, he sure is an interesting person, and very well loved. We look forward to the opportunity to hold him again. Oh, and it's about time someone took the time to really watch and observe and see what's really going on with our boy. Tell that doctor thank you for finally taking a real look at things. Hopefully now he can be treated for what is going on and not just what something appears to be. Love you guys, hang in there Amie Kai.