Talk about Transplant

Today Brody had a scheduled visit to the Renal Clinic. We found that despite all our efforts, Brody's blood pressure is still very high. Today was 150/100. And that his renal function labs keep coming back with critical values, meaning his kidney function is not improving. In fact, it is worsening. In January we were told that they estimate Brody's kidney function to be about 30-35%. Today it was estimated at 25%. That great of a loss in under three months. I asked them at what point do they generally start dialysis. They said usually at 20%, but with Brody and his other health issues it would be in his best interest to skip dialysis and go straight for transplant. And with the downward trend in his kidney function, I think its coming fast. To say I'm terrified would be an understatement. Transplant is difficult enough for moderately healthy children. Let alone a child with a myriad of other serious health complications. We know through our research of Jeune Syndrome that over 90% of these children die from Respiratory or Renal failure. Brody has both at the same time. But we've come this far and there hasn't been a mountain we haven't climbed. We're not giving up without a fight!!