Painful for Him, Painful for Me

Although I feel my complaints were justified, I still feel selfish for whining about our discharge plans. Some parents will never get the option to take their kids home, if you know what I mean. We are lucky we get the option. He's been so close to death so many times. I really am grateful that we still have him in our lives. But I am still upset that his pain and agitation isn't being addressed properly. I know that Brody will never be healthy and that, well, his days are numbered. But does that make him less deserving of peace and comfort than you or I? Should he have to just deal with the pain? Above all, I just want to make him as comfortable as possible until the day our angel returns to heaven. I'm not expecting a full recovery or even a long life. I know better. I hate thinking that what may be the last weeks of his life will be filled with pain and discontent. Its painful for me to think about. I just want to see him at peace.