The Child First and Always?

This hospital is great and I'm grateful for the services they provide but the past few days have been a joke. A total let down. Besides getting all the supplies ordered and still not being able to figure out insurance claims for our discharge... Today, Brody's blood pressure went high again. His stomach has been giving him so much pain that he holds his breath and his heart rate doubles. He has been sleeping more. Sweating more. And he went several hours without urinating. When the resident doc came in to address these concerns, in the same conversation, he wanted to confirm that we were still leaving tonight. Hello?! And when I try to discuss my concerns, they still urge us to go home and just go to our local hospital and asked to be transported back if it continues to be an issue. At this point, its a given that there are going to be immediate issues. Physically, he's not tolerating his tube feedings well. Not the feeds but just having the tubes down there creates pain. And they said that they can't give him anything for it. Basically that he'll just have to deal with it. Good thing its temporary until he gets his G Tube placed next week. Oh wait! That's right. The GI surgeons told me they can't get him in until May 22. And to expect at least a week here to recover. Which puts him here for his birthday May 26. What happened to doing it next Monday?! And what about the hospital's motto: The Child First and Always? Don't get me wrong. I love this hospital dearly. My home away from home. Its just that we are usually taken such good care of but right now, I feel a little let down.